Unpredictable

Remember the last post about our longest stay home? Well this post could be called the shortest stay home. Wednesday during dinner Luke was being his funny little self. I was laughing so hard at him teasing Isaac. Less than 2 minutes later Luke got goosebumps all over his body and started shaking like crazy and clinging to me saying owie owie. He acted like he had a hard time catching his breath. I checked his temp and he had a fever of 101. Lukie continued to act funny after about 5 minutes and I checked his temp again, his time his fever was 103.5. Not good! Especially since he is still on IV antibiotics from his last blood infection that started exactly 2 weeks before (even the exact same time, kind of weird). I took him to the after hours doctor. To tell you the truth I think he kind of blew me off and thought I was crazy thinking he had a line infection while still on antibiotics. Remember when Lukie was little and the on call doctor did not look at Lukie's medical history and gave him a shot of rocefin for an ear infection which resulted in liver problems, ya this was the same guy! I requested to go the the hospital for blood work and cultures, and they sent me home to wait for the regular lab results. At 11:00 at night the dr called and said labs didn't look too bad, somethings were a little elevated more than he would like but we could stay home and do our own antibiotics and follow up with our regular doc in the morning. I finished Lukie's meds and went to bed around midnight. Lukie always sleeps with us so I can keep a close eye on him. At 12:30 Lukie stats breathing very heavy, 1:00 chills all over his body crying owie owie clinging to me having a hard time catching his breath. Luke continues to be fussy and uncomfortable, we debated about taking him straight to the hospital but don't know what to do with the older boys. About 2:30 while rocking him in the rocking chair poor little Lukie acts like he can't control his body, he is very scared , something is REALLY bad going on in his sweet little body, he lets out a blood curling scream and goes into convulsions (probably due to the fever of 104.7 at this point). I scream and Mike comes running. I have not been that scared in my life, I can't even explain what happened. We knew he needed to get to the hospital fast but don't dare drive him an hour drive to the children's hospital (the on call doc suggested if this got worse on go to (PCMC). Mike called 911 and an ambulace to transport us. His heart rate was 215 (his normal rate is around 120), temp 104.7, very shaky and had a hard time catching a breath. While in the ambulance the on call doc called me to inform me the cultures had already grown bacteria and was afraid the infection was pretty sevier. I told him what had happened and he felt very bad. Anyway here we still sit at PCMC waiting to see if we can save Lukie's central line. We are not sure what the bug is yet but it is a gram - which comes on very suddenly and can be very scary. Lukie is now stable, his fever is gone and pulse is in the normal range. Poor little guy is scared to death to be here. I hope things will clear up soon. Thanks for all of the prayers and keep them coming. We love you all!

getting some fresh air outside

Lukie loves taking the baby for a walk

Longest Record!!!

Many of you have wondered wow Lukie has been home a LOOOONG time! And yes he has:) Lukie has been doing great the last 10 months. We have only had 2 hospital stays in the last 10 months, one week at Pittsburgh Children's, and 2 days at Texas Children's. We have dealt with several illness's, ear infections, RSV, flu, infected GJ tube and more. But this week we broke our long streak:(

Wednesday evening Lukie started being very clingy, than he started breathing funny. He felt warm so I took his temperature and it was 104, not a good thing for a central line kid. I call his doctor and he was in his office late and said to bring him right in. They admitted us to the hospital and did blood work and blood cultures. The culture came back positive with a bacteria blood infection with Gram Positive Rods and Cocci which is probably Staph. They started strong antibiotics and followed regular protocol. This morning he still had a positive blood culture. I was told by hospital staff we would probably be staying a few more days, we can't be discharged with a positive blood culture. But when Dr. Later came in he said he had total trust in us and we could go home! We will be doing IV antibiotics at home for the next 2 weeks, and cultures for the next 3 days until we get a negative blood culture, and keeping close contact with his doctor. If Lukie gets a fever, lethargy, or keeps getting positive blood cultures we will have to be admitted again. So we are keeping our fingers crossed! This was our shortest blood infection stay ever! Things went very smoothly, and I think we caught the infection very early. I'm thankful for the prayers for Lukie, and wonderful doctors and nurses that care for him and put their trust in us.

Lukie was sooo excited to see his big brothers and loved the big monkey balloon they brought for him!!

Watching Toy Story with his favorite buddies Woody and Buzz

Adventures in Parenthood

Remember my last post with my cute little Isaac riding a 2 wheeler? Well he is not so cute any more. This is not what you want to see in front of your house when your child has just learned to ride a bike 3 days before..........
Isaac and his little friend LaVonne decided they wanted to take a ride to Target to see all of the cool toys. I thought the kids were at LaVonne's house and LaVonne's mom (Lorna) thought that the kids were at our house. The older kids realized that Isaac and LaVonne were not around so they rode their skateboards around the neighborhood looking for them, while Lorna drove around trying to find them (I was still oblivious they were gone). The kids were found on Center Street (a very busy street especially for 2 little ones). LaVonne lost her balance on a scooter and fell off the curb and into traffic just as a cop slammed on his brakes trying not to hit her. The cop asked where they lived, phone numbers etc, which neither one knew. Isaac told the cop my named was Allison Dinsdale lol. Any way a neighbor saw the kids with the police officer and called Lorna. Then they brought Isaac home to me. The cop said if we didn't call the cops within an hour they would have to look into child neglect. After the cop left I asked Isaac what he was going to do a Target because he doesn't have money. He said they were just going to sneak some toys. Have I not teach my children anything!!! My kids are not allowed to walk to Target, and Isaac is not allowed to ride his bike across the street!! But somehow he always forgets:) Oh well I feel like a horrible mom. But the kids are safe, it could have ended a lot worse. And yes Isaac is grounded from his bike and video games for the rest of the summer.